References
Bluebond-Langner, M., Belasco, J.B., Goldman, A., & Belasco, C. (2007). Understanding parents' approaches to care and treatment of children with cancer when standard therapy has failed. Journal of Clinical Oncology, 25, 2414-2419. doi:10.1200/JCO.2006.08.7759
Bryant, R.A. (2003). Early predictors of posttraumatic stress disorder. Biological Psychiatry, 53, 789-795. doi:10.1016/S0006-3223(02)01895-4
Carnevale, F.A. (2004). The story of Margaret and her family: Forced choices, obligations, and hope. Pediatric Nursing, 30, 238-241.
Collins, J.J., Stevens, M.M., & Cousens, P. (1998). Home care for the dying child. A parent's perception. Australian Family Physician, 27, 610-614.
Contro, N., Larson, J., Scofield, S., Sourkes, B., & Cohen, H. (2002). Family perspectives on the quality of pediatric palliative care. Archives of Pediatrics and Adolescent Medicine, 156, 14-19.
Creswell, J.W. (2003). Research design: Qualitative, quantitative, and mixed methods approaches. Thousand Oaks, CA: Sage.
Davies, B., Deveau, E., deVeber, B., Howell, D., Martinson, I., Papadatou, D., … Stevens, M. (1998). Experiences of mothers in five countries whose child died of cancer. Cancer Nursing, 21, 301-311. doi:10.1097/00002820-199810000-00001
De Trill, M., & Kovalcik, R. (1997). The child with cancer. Influence of culture on truth-telling and patient care. Annals of the New York Academy of Sciences, 809, 197-210.
Freeman, K., O'Dell, C., & Meola, C. (2000). Issues in families of children with brain tumors. Oncology Nursing Forum, 27, 843-848.
Fulton, G., Madden, C., & Minichiello, V. (1996). The social construction of anticipatory grief. Social Science and Medicine, 43, 1349-1358.
Fulton, R. (2003). Anticipatory mourning: A critique of the concept. Mortality, 8, 342-351.
Giorgi, A. (1997). The theory, practice, and evaluation of the phenomenological method as a qualitative research procedure. Journal of Phenomenological Psychology, 28, 235-261. doi:10.1163/156916297X00103
Giorgi, A. (2005). The phenomenological movement and research in the human sciences. Nursing Science Quarterly, 18, 75-82.
Grootenhuis, M.A., & Last, B.F. (2006). Children with cancer. Recent Results in Cancer Research, 168, 73-79. doi:10.1007/3-540-30758-3_7
Gunnarson, H., & Ohlen, J. (2006). Spouses' grief before the patients' death: Retrospective experiences related to palliative home care in urban Sweden. Mortality, 11, 336-351.
Hechler, T., Blankenburg, M., Friedrichsdorf, S.J., Garske, D., Hubner, B., Menke, A., … Zernikow, B. (2008). Parents' perspective on symptoms, quality of life, characteristics of death, and end-of-life decisions for children dying from cancer. Klinische Pädiatrie, 220, 166-174. doi:10.1055/s-2008-1065347
Hinds, P.S., Oakes, L., Furman, W., Foppiano, P., Olson, M.S., Quargnenti, A., … Strong, C. (1997). Decision making by parents and healthcare professionals when considering continued care for pediatric patients with cancer. Oncology Nursing Forum, 24, 1523-1528.
James, L., & Johnson, B. (1997). The needs of parents of pediatric oncology patients during the palliative care phase. Journal of Pediatric Oncology Nursing, 14, 83-95.
Kars, M.C., Duijnstee, M.S., Pool, A., van Delden, J.J., & Grypdonck, M.H. (2008). Being there: Parenting the child with acute lymphoblastic leukaemia. Journal of Clinical Nursing, 17, 1553-1562.
Kars, M.C., Grypdonck, M.H., Beishuizen, A., Meijer-van den Bergh, E.M., & van Delden, J.J. (2010). Factors influencing parental readiness to let their child with cancer die. Pediatric Blood and Cancer, 54, 1000-1008. doi:10.1002/pbc.22532
Kars, M.C., Grypdonck, M.H., de Korte-Verhoef, M.C., Kamps, W.A., Meijer-van den Bergh, E.M., Verkerk, M.A., & van Delden, J.J. (2011). Parental experience at the end of life in children with cancer: "Preservation" and "Letting go" in relation to loss. Supportive Care in Cancer, 19, 27-35. doi:10.1007/s00520-009-0785-1
Kreicbergs, U., Valdimarsdottir, U., Onelov, E., Henter, J.I., & Steineck, G. (2004). Talking about death with children who have severe malignant disease. New England Journal of Medicine, 351, 1175-1186.
Kvale, S. (1996). Interviews: An introduction to qualitative research interviewing. Thousand Oaks, CA: Sage.
Liben, S., Papadatou, D., & Wolfe, J. (2008). Paediatric palliative care: Challenges and emerging ideas. Lancet, 371, 852-864.
Mack, J.W., Joffe, S., Hilden, J.M., Watterson, J., Moore, C., Weeks, J.C., & Wolfe, J. (2008). Parents' views of cancer-directed therapy for children with no realistic chance for cure. Journal of Clinical Oncology, 26, 4759-4764. doi:10.1200/JCO.2007.15.6059
Martinson, I. (1996). An international perspective on palliative care for children. Journal of Palliative Care, 12, 13-15.
Marwit, S.J., & Klass, D. (1996). Grief and the role of the inner representation of the deceased. In D. Klass, P.R. Silverman, & S.L. Nickman (Eds.), Continuing bonds: New understanding of grief (pp. 297-308). Washington, DC: Taylor and Francis.
Molenkamp, C., Abu-Saad, H.H., & Hamers, J. (2002). Pediatric palliative care in the Netherlands [In Dutch]. Maastricht, Netherlands: Maastricht University.
Monterosso, L., & Kristjanson, L.J. (2008). Supportive and palliative care needs of families of children who die from cancer: An Australian study. Palliative Medicine, 22, 59-69. doi:10.1177/0269216307084608
Nitschke, R., Meyer, W.H., Sexauer, C.L., Parkhurst, J.B., Foster, P., & Huszti, H. (2000). Care of terminally ill children with cancer. Medical and Pediatric Oncology, 34, 268-270.
Nuss, S.L., Hinds, P.S., & LaFond, D.A. (2005). Collaborative clinical research on end-of-life care in pediatric oncology. Seminars in Oncology Nursing, 21, 125-134. doi:10.1016/j.soncn.2004.12.011
Parkes, C.M. (1971). Psycho-social transitions: A field for study. Social Science and Medicine, 5, 101-115.
Pousset, G., Bilsen, J., Cohen, J., Addington-Hall, J., Miccinesi, G., Onwuteaka-Philipsen, B., … Deliens, L. (2010). Deaths of children occurring at home in six European countries. Child: Care, Health, and Development, 36, 375-384.
Rando, T.A. (Ed.). (1986). Loss and anticipatory grief. Lexington, MA: Lexington Books.
Rini, A., & Loriz, L. (2007). Anticipatory mourning in parents with a child who dies while hospitalized. Journal of Pediatric Nursing, 22, 272-282. doi:10.1016/j.pedn.2006.08.008
Saiki-Craighill, S. (2002). The personal development of mothers of terminal cancer patients. Qualitative Health Research, 12, 769-779. doi:10.1177/10432302012006004
Silverman, P.R., & Nickman, S.L. (1996). Concluding thoughts. In D. Klass, P.R. Silverman, & S.L. Nickman (Eds.), Continuing bonds. New understanding of grief (pp. 349-356). Washington, DC: Taylor and Francis.
Stroebe, M., & Schut, H. (2005). To continue or relinquish bonds: A review of consequences for the bereaved. Death Studies, 29, 477-494.
Theunissen, J.M., Hoogerbrugge, P.M., van Achterberg, T., Prins, J.B., Vernooij-Dassen, M.J., & van den Ende, C.H. (2007). Symptoms in the palliative phase of children with cancer. Pediatric Blood and Cancer, 49, 160-165. doi:10.1002/pbc.21042
Ulrich, C.M., Grady, C., & Wendler, D. (2004). Palliative care: A supportive adjunct to pediatric phase clinical trials for anticancer agents. Pediatrics, 114, 852-855. doi:10.1542/peds.2003-0913-L
Vickers, J.L., & Carlisle, C. (2000). Choices and control: Parental experiences in pediatric terminal home care. Journal of Pediatric Oncology Nursing, 17, 12-21.
Wolfe, J., Grier, H.E., Klar, N., Levin, S.B., Ellenbogen, J.M., Salem-Schatz, S., … Weeks, J.C. (2000). Symptoms and suffering at the end of life in children with cancer. New England Journal of Medicine, 342, 326-333.
Wolfe, J., Hammel, J.F., Edwards, K.E., Duncan, J., Comeau, M., Breyer, J., … Weeks, J. (2008). Easing of suffering in children with cancer at the end of life: Is care changing? Journal of Clinical Oncology, 26, 1717-1723. doi:10.1200/JCO.2007.14.0277
Wolfe, J., Klar, N., Grier, H.E., Duncan, J., Salem-Schatz, S., Emanuel, E.J., & Weeks, J. (2000). Understanding of prognosis among parents of children who died of cancer: Impact on treatment goals and integration of palliative care. JAMA, 284, 2469-2475.
Woodgate, R.L. (2006). The importance of being there: Perspectives of social support by adolescents with cancer. Journal of Pediatric Oncology Nursing, 23, 122-134. doi:10.1177/1043454206287396